Sunday, May 15, 2016

Another death in the family makes me think how AIDS still kills and reflecton where we are today in fighting it a critique of PrEP

I am mouring the death of my friend Robert, as are many of my friends.  I trust you know AIDS is still a TERMINAL , incurable disease. People who are long term persons with AIDS die today usually of complications from the medical treatments that have taken to stay alive. There is no cure . Despite the fantasy of some AIDS/HIV activists and the advertising campaigns of Big Pharma. Big Pharma greed is on ample public display in the outrageous prices they charge for life sustaining drugs.These drugs come with positive and negative consequences..The good news is that for many the drugs prolong life , the bad news is theses drugs come with their own baggage. ;

 We now know that premature aging, HIV drug related dementia and a plethora of other organ failure like the heart and the liver are side effects,. Safe sex (condom use) is the best protection if one is concerned about HIV. or other STDs or pregnancy The Obama administration in order to fulfill the Congressional GOP led call that pissed for a financial sequester on all federal sponsored programs ( choosing cuts over raising taxes on the rich and corporations) lead to safe sex education cuts in the Health Department and the CDC. .. Instead the Obama administration partnered up with Big Pharma to push forward a program called PrEP. PrEP is a program that wants to have anyone at risk for HIV infection (the controversy over what that means I will leave aside for the moment ) to take a little blue pill , a serious AIDS drug with know serious side effects on sick bodies and at this stage because of the newest of an experimental program unknown in healthy bodies. The drug is called truvada. At present it costs about $18,000 a year. Even if it was free (and despite whatever propaganda funded by Big Pharma and its partners in government local, state or federal it is NOT free ,, we the taxpayers will pay for it if someone gets it for "free. Big Pharma still will make its profit). 

 "At risk " is defined as anyone (regardless of sexual orientation) sharing semen or sex related body fluids. A special emphasis is placed on passive participation in anal sex (which is a sex act not exclusive to the gay male population) . 

PrEP was launched at the international AIDS conference in DC where I witnessed the cheerleading recruitment launch campaign. I was shocked to realize that forty years of AIDS activists (in NYC ACT UP led by women) demands for safe sex condom use and more that 60 years of women demanding men wear condoms, 

Than I saw the Big Pharma, local, state and federal government were now joined by some AIDS activists and by community AIDS educators who had lost their jobs when Federal funding of safe sex education was cut and when Big Pharma replaced the funding and they got their jobs back with the proviso that their safe sex education was focused on PrEP. (GMHC etc) .Yes after a loud protest across the country condom use was added as a cautionary step .

 But the universal message the public understood despite what ever warning was that if you take a blue pill, you could forget about safe sex, You will not get AIDS. What most users did not understand is a: the drug appears in early studies to prevent transmission of HIV in about 90% of the cases documented .. (Note this number may change in studies ) . the reality is that is not a foolproof HIV prevention method.

Most importantly it does not prevent the transmission of any other STD's What we have seen in the gay controlled section of the porn industry is a avalanche of unsafe sex gay porn. (no condoms). So besides the use of a viagra or it's imitators in young male porn actors who are without physically based erectile dysfunction issues the little pule pill has been added. 

AIDS activist seen incapable of criticizing the gay porn industry ..eg Michael Lucas. 

So now where I live the cases of syphilis among young gay men who go to public health centers is over the top. Unknown is the number of std among gay men who seek private doctor care . Let me say loud and clear as someone who first became active in AIDS/HIV activism in 1982 I think it crazy to ingest a serious AIDS drug with know and unknown side effects in a healthy body. as a prophylaxis. . I would not do it. 

As to others ,because i believe each of us has the right to control our own bodiesI can only suggest that individuals make an INFORMED choice to use truvada or not if they are healthy and not HIV + or have AIDS . , My goal is to make sure that any person confronted with the massive PrEP propaganda recruitment campaign has ALL ht information to make an INFORMED choice. I know that Robert fought for the right to control his own body and respect for his treatment choices. . All of us who loved him I believe are charged to continue that each of us has ALL the information in order OT make an informed choice.. Ione of the saddest aspects of the pro-PrEP campaign by some AIDS activists is to realize that some of the leaders are long ten survivors of AIDS /HIV infection. I appreciate their wanting to end AIDS but reject their willingness become pawns in Big Pharma ever extending web of exploitation of legitimate health concerns for profit.


I share my  grief with all my friends e. Robert was loved by many 

photo: Robert Levithan by Peter Hujar (cc)  


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